In a heart-wrenching account, Jo Walton reflects on the life and tragic death of her daughter, Sarah, who suffered from a devastating complication of measles known as subacute sclerosing pan-encephalitis (SSPE). Sarah, who contracted measles at just 11 months old, lived a vibrant life for over two decades before succumbing to the effects of this rare neurological condition. With a recent outbreak of measles in northeast London, Jo is urging parents to ensure their children receive the measles, mumps, and rubella (MMR) vaccine to prevent similar heartaches.
The Silent Threat of SSPE
SSPE is an extremely rare but severe complication that arises in about one in every 50,000 cases of measles. It typically manifests five to 15 years after a child has recovered from measles, and unfortunately, it can be fatal. Since 2009, the UK has seen six deaths linked to this condition, according to the UK Health Security Agency. The virus that causes SSPE is a mutation of the original measles virus, underscoring the importance of vaccination to prevent measles in the first place.
Jo Walton recalls her daughter as a lively child, hitting milestones ahead of her peers. However, when Sarah contracted measles at her nursery, she was too young to receive the MMR vaccine, which is administered to children over 12 months. Although Sarah initially recovered without serious repercussions, her condition took a tragic turn two decades later.
A Mother’s Heartbreak
In 2004, at the age of 25, Sarah began to exhibit troubling symptoms reminiscent of a stroke. Jo described the gradual decline in her daughter’s abilities: “She’d lose words, she’d do buttons up wrong, she’d put the washing machine on without any washing powder in it.” After seeking medical advice, the family received the shocking diagnosis of SSPE. Jo remembers the doctor explaining that it was a terminal condition with no available treatment.
Just two months after her diagnosis, Sarah was hospitalised following severe pain. The deterioration was swift and devastating; within weeks, she lost her ability to walk, talk, and swallow. Jo and her husband Mark devoted themselves to caring for Sarah, who lived with them until her death on 26 February 2025. “She fought so hard to stay with us for 20 years. We miss her every single day and night,” Jo lamented.
The Importance of Vaccination
Jo Walton’s story comes at a critical time, as the UK faces a concerning rise in measles cases, particularly in Enfield, where over 60 cases have been reported among children under 10. This increase in infections is largely attributed to a decline in MMR vaccination rates, prompting health officials to stress the importance of immunisation. Measles can lead to severe complications, including encephalitis, which can result in lifelong disabilities or even death.
Jo is adamant that her daughter’s experience should serve as a warning to other parents. “Measles is evil, and it should be vaccinated against,” she stated. She hopes that by sharing Sarah’s story, more families will recognise the importance of the MMR vaccine in safeguarding their children’s health.
Raising Awareness
In response to the rising incidence of measles and related complications like SSPE, charitable organisations such as Encephalitis International are launching campaigns to raise awareness about the symptoms of encephalitis and the critical need for vaccination. Symptoms to watch for include flu-like signs, loss of consciousness, acute headaches, memory problems, emotional changes, and seizures. Parents are encouraged to consult their GP or call NHS 111 if they suspect their child may have measles.
Why it Matters
The tragic story of Sarah Walton serves as a poignant reminder of the importance of vaccinations in preventing serious health complications. As outbreaks of measles threaten public health, the message is clear: immunisation is not just a personal choice but a collective responsibility. By ensuring their children receive the MMR vaccine, parents can protect not only their families but also the wider community, preventing the resurgence of diseases that can have devastating and life-altering consequences.
