Martyn Butler, a stalwart in the fight against HIV and AIDS and co-founder of the Terrence Higgins Trust, passed away on 21 February 2026, at the age of 71. His journey began in 1982, spurred by the tragic death of his close friend Terry Higgins, one of the UK’s earliest victims of an AIDS-related illness. Alongside Terry’s partner, Rupert Whitaker, Martyn dedicated his life to building a charity that would transform the landscape of HIV awareness and support in the UK.
The Birth of a Movement
The establishment of the Terrence Higgins Trust marked a pivotal moment in the response to the health crisis that was sweeping the globe. Following Terry’s untimely death in July 1982, Martyn and Rupert recognised that urgent action was necessary. They mobilised a group of friends to launch the charity, aiming to raise vital funds for medical research and support services. However, it quickly became apparent that the funding required would need to come not only from charitable donations but also from government and pharmaceutical contributions.
In a time when the threat of HIV was largely misunderstood, the need for community-driven support became increasingly evident. The London Lesbian and Gay Switchboard was inundated with calls from concerned individuals, prompting a historic conference in 1983 that brought together key figures from the gay community and health organisations. Martyn delivered a powerful speech at this gathering, emphasising the necessity of providing education, care, and advocacy for those affected by the disease.
Overcoming Stigma and Building Support
In the face of rampant stigma and societal prejudice, the Terrence Higgins Trust emerged as a beacon of hope. At a time when the Conservative government under Margaret Thatcher was hesitant to fund initiatives associated with gay rights, Martyn and his colleagues persevered, offering essential services and accurate information to anyone in need. The trust quickly became a trusted resource, thanks to the overwhelming support from the gay community, which raised substantial funds through countless events across London’s vibrant venues.
Despite the challenges they faced, including police raids on gay bars and the oppressive atmosphere created by laws such as Section 28, which sought to silence discussions around homosexuality, Martyn remained undeterred. He tirelessly campaigned for the rights and health of those living with HIV, contributing to a legacy of support that would see the trust grow into a vital organisation. Over the years, the trust has provided hundreds of thousands in hardship grants and continues to offer counselling and support to those affected by HIV.
A Legacy of Resilience and Advocacy
Martyn’s personal journey was marked by loss and resilience. He recorded the funerals of more than 50 friends, including his partner, who succumbed to AIDS at just 22 years old. Born in Newport, South Wales, Martyn faced significant challenges early in life due to congenital hearing loss, which left him feeling isolated during his school years. However, he persevered, moving to London in the 1970s, where he worked in advertising and as a cinema technician, eventually meeting Terry in the nightlife scene.
Though he never received a salary from any HIV organisation, his contributions did not go unnoticed. In 2022, he was honoured with an OBE and the Rainbow Honours lifetime achievement award for his dedication to the cause. After a successful career running a laser light show business, Martyn returned to Newport, where he continued to serve as a passionate advocate for the Terrence Higgins Trust until his death. He was scheduled to speak at a Plaid Cymru conference just days after his passing, demonstrating his unwavering commitment to the cause.
Martyn is survived by his mother, Diane, and his siblings, Guy, Andrew, and Jacqueline, who will undoubtedly carry forward his legacy of compassion and advocacy.
Why it Matters
Martyn Butler’s life and work embody the spirit of resilience in the face of adversity. His efforts not only transformed the landscape of HIV awareness and support in the UK but also paved the way for future generations to continue the fight against stigma and discrimination. As the Terrence Higgins Trust aims to eliminate HIV transmission by 2030, Martyn’s legacy serves as a reminder of the power of community, compassion, and unwavering determination in the pursuit of health equity and social justice. His story is one of hope—a testament to the profound impact that one individual can have on the lives of many.
