**
In a heartbreaking account, Jo Walton shares the story of her daughter, Sarah, whose life was irrevocably altered by a rare complication of measles known as subacute sclerosing pan-encephalitis (SSPE). Sarah contracted measles at 11 months old, too young to receive the protective MMR vaccine. Tragically, decades later, she succumbed to the devastating effects of SSPE, prompting her mother to advocate fervently for vaccination amidst a current outbreak in London.
The Silent Threat of SSPE
Sarah Walton was born in 1979 and was known for her energetic spirit. However, after catching measles at a nursery when she was just 11 months old, she faced an unforeseen and severe consequence decades later. While she made a full recovery from the initial measles infection, a mutation of the virus led to SSPE, a rare and progressive neurological condition that affects approximately one in 50,000 measles cases. This condition typically emerges 5 to 15 years post-infection, often resulting in irreversible damage to the brain.
For 16 years, Sarah fought against the debilitating effects of SSPE, which stripped her of her ability to walk, talk, and even swallow. Tragically, she passed away at the young age of 45, leaving her family devastated. Jo Walton now passionately advocates for the MMR vaccine, believing it could prevent similar tragedies for other families.
An Urgent Call for Vaccination
As the UK grapples with a rise in measles cases, particularly in Enfield, where over 60 infections have been reported among children under 10, Jo is determined to raise awareness. She stated, “Sarah’s fondest hope was that nobody else would endure what she experienced. It is heart-wrenching to witness the resurgence of SSPE cases since her passing. This is an illness that should not be occurring in the 21st century.”
The UK Health Security Agency has reported that since 2009, six individuals — three children and three adults — have been diagnosed with SSPE. Jo emphasised the critical need for parents to vaccinate their children against measles, citing the severe consequences of the disease itself, which can lead to encephalitis, lifelong disabilities, and neurological disorders.
Sarah’s Journey: From Vibrancy to Tragedy
As a child, Sarah was a bright and active individual, reaching developmental milestones ahead of her peers. She thrived in academics and sports, eventually studying midwifery at King’s College London. However, at the age of 25, Sarah began experiencing troubling symptoms reminiscent of a stroke. After consulting her doctor, she received the devastating diagnosis of SSPE in September 2004.
Jo recalls the day they learned of Sarah’s condition: “I had never heard of SSPE. The doctor explained it was a rare but devastating complication of measles, and it was terminal.” Within two months, Sarah’s health plummeted dramatically, and by December, she was unable to perform basic functions.
Jo and her family provided care for Sarah at home, supported by nursing staff, until her passing in February 2025. Jo reflected on her daughter’s resilience, stating, “Despite her severe illness and disabilities, her spirit never faded. We miss her dearly.”
Understanding Measles and Its Risks
Measles begins with cold-like symptoms, followed by a characteristic rash that spreads across the body. The NHS advises parents to seek medical advice if they suspect their child may have measles. Recognising the symptoms is crucial, as the disease can escalate quickly, leading to severe complications.
Encephalitis International has launched the FLAMES campaign to raise awareness of the signs of encephalitis, which include flu-like symptoms, loss of consciousness, headaches, memory issues, behavioural changes, and seizures.
Why it Matters
The tragic story of Sarah Walton highlights the critical importance of vaccination in preventing diseases that can lead to life-altering consequences. As outbreaks emerge, the call for parents to vaccinate their children becomes ever more urgent. By sharing her daughter’s experience, Jo Walton hopes to inspire a renewed commitment to immunisation, ensuring that no other family has to endure the pain of losing a loved one to a preventable illness. Vaccination is not just personal; it is a communal responsibility that can safeguard future generations.
